Related Links

Clicking on the links below will take you to other sites with information about Fabry disease or related topics. Many of the websites listed offer support groups, newsletters, and clinical trial updates, including recruitment announcements for upcoming trials. These websites and their contents are maintained by the organizations listed below. Genzyme does not endorse these sites nor is it responsible for the content or maintenance of these sites.

Canadian Organization for Rare Disorders (CORD)
www.cord.ca
Email: office@cord.ca
403-345-4544
Fax 403-345-3948

Fabry Support & Informatie Groep Nederland
Email: fsign@hotmail.com
www.fabry.nl
+31 0598-394811
Fax +31 0598-394812

Fabry Support and Information Group
www.fabry.org
Email: jjohnson@fabry.org
660-463-1355
Fax 660-463-1356

Genetic Alliance
www.geneticalliance.org
Email: info@geneticalliance.org
202-966-5557, 800-336-GENE (-4363)
Fax 202-966-8553

Genetics Education Center
University of Kansas Medical Center
www.kumc.edu/gec

International Center for Fabry Disease
Mount Sinai School of Medicine
www.mssm.edu/genetics/fabry
Email: fabry.disease@mssm.edu
212-659-6700, 866-322-7963
Fax 212-360-1809

National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
www.ninds.nih.gov

National Organization for Rare Disorders (NORD)
www.rarediseases.org
Email: orphan@rarediseases.org
203-746-6518, 800-999-NORD (-6673)
Fax 203-746-6481

Division of Neurogenetics/Fabry Disease Program
NYU School of Medicine
www.med.nyu.edu/neuro/neurogenetics/fabry1_sum.html
212-263-8344
Fax 212-263-8310

Website of Human Gene Mutation Database at the Institute of Medical Genetics in Cardiff, from the University of Wales College of Medicine.
www.uwcm.ac.uk/uwcm/mg/search/119272.html