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Communicating With Others About Fabry

Talking with familyTalking with friends
Talking with your doctorTalking with teachers
Finding additional support 

Effective communication may help you get the support and understanding you need from family, friends, and physicians.

This section offers suggestions on how to communicate with family, friends, and health care providers. It also has a separate section that may help parents talk to teachers and caregivers about their children’s Fabry disease.

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Fabry Registry

First Symptoms to Diagnosis

Data from the Fabry Registry confirms the large gap between the average age of symptoms onset (10.5) and diagnosis of Fabry disease (28.5). To learn more about the importance of the Fabry Registry click here.

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