Find Fabry Disease Resources

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Genzyme Corporate

Research

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About Fabry Disease

Living With Fabry

	Fabry Profiles
	Information For Parents
	Communicating With Others
	Fabry Patient Survey

Treating Fabry Disease

Resources

Partnering With Genzyme

Finding Additional Support

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Talking with your doctor Talking with teachers

Finding additional support

In addition to talking with your family, friends, and health care providers, you may want to join a support group. Sharing your experiences with others can be a great support, and you may learn some new strategies that can help you more effectively cope with your disease. For links to some other sites to find information and support groups, please visit the Resources section of this site.


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	First Symptoms to Diagnosis Data from the Fabry Registry confirms the large gap between the average age of symptoms onset (10.5) and diagnosis of Fabry disease (28.5). To learn more about the importance of the Fabry Registry click here.


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	Genzyme Therapeutics 500 Kendall Street Cambridge, MA 02142 617 768 9000 800 326 7002 Genzyme Europe BV Gooimeer 10 1411 DD Naarden The Netherlands 31 35 699 1200

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