Resources for People with Fabry Disease and Other Genetic Disorders

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Resources Overview

In addition to this site, there are many other resources for people with Fabry disease and other rare genetic diseases.

Click on the links to the left to request additional materials, find out where to get answers to medical questions, and explore other sites that provide access to support groups and more information about Fabry disease.


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	First Symptoms to Diagnosis Data from the Fabry Registry confirms the large gap between the average age of symptoms onset (10.5) and diagnosis of Fabry disease (28.5). To learn more about the importance of the Fabry Registry click here.


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	Genzyme Therapeutics 500 Kendall Street Cambridge, MA 02142 617 768 9000 800 326 7002 Genzyme Europe BV Gooimeer 10 1411 DD Naarden The Netherlands 31 35 699 1200

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