Support Groups

Supporting the Fabry community

Many of the websites listed here offer support groups and newsletters. These sites and their contents are maintained by the organizations listed below. Sanofi Genzyme Corporation does not endorse these sites, nor is it responsible for their content or maintenance.

Fabry support sites in the United States

Fabry Support and Information Group
www.fabry.org
Email: jjohnson@fabry.org
660-463-1355
Fax: 660-463-1356

National Fabry Disease Foundation
www.theNFDF.org
Email: info@theNFDF.org
800-651-9131
Fax: 800-651-9135

National Organization for Rare Disorders (NORD)
www.rarediseases.org
Email: orphan@rarediseases.org
203-746-6518, 800-999-NORD (-6673)
Fax: 203-746-6481