Online Resources

As awareness of Fabry disease grows, so does the number of groups and websites that support the Fabry community and others living with genetic disorders.

Fabry specific sites in the United States

Fabry Support and Information Group (FSIG)

National Fabry Disease Foundation (NFDF)

National Kidney Foundation (NKF)

Lysosomal storage/genetic/rare disease sites in the United States

Genetic Alliance


National Organization for Rare Disorders (NORD)